We addressed some of the issues already. In the morning, she goes to another teacher's room for a while to read and de-stress. It also keeps her away from her classmates in line at one point, which is a surefire trigger. In the afternoon, there's an aide that can give her some attention. She gets hungry at one point, so now there's a Costco-sized box of snack bars she can utilize when she gets hungry. Sometimes the teacher has another adult take her out to help make copies. The student teacher takes her out to run laps on the playground.
During the summer the special ed teacher and I started the process of an IEP, Individualized Education Program. It took well over the time it was supposed to to get the meeting, and they rescheduled it once (at the very last minute, after I'd already taken the day off work). But I didn't complain. They were doing a ton of evaluations and things on Azadeh.
One day at school, (during a meeting with the principal about a behavior incident) the special ed teacher (Mrs. M) told me she'd added that they should test Z's IQ, not because she thought it was relevant, just because she was curious. I laughed, and said that was fine.
Finally, last week, the day came. It was a long meeting -- two hours! In it was Ms. R, the district case manager, a speech therapist, Mrs. M, a school psychologist, the principal, Mrs. H, and the student teacher (Ms. S) who is training with Mrs. M (and who did a lot of the testing). Later, her teacher, Mrs. P, joined us.
So they went around the table and sort of read out all their reports first. Ms. R had the report that Ms. S had written and provided to her, but that was basically cribbed from my notes to her, so she was reading my words to me, basically. "Azadeh loves science, reading, pretending..." and I'm like, "Yes, I know this." What was funny about her part was that I wasn't entirely sure she had read it before. She kept stumbling a little when coming upon surprising information. "She's reading high... high? High school level texts." And at one point she was grinning stupidly (I'm not trying to be mean -- it was just kind of a dopey grin) and said, "I'm sorry I'm smiling -- it's just not that often that we get to read stuff like this!"
Then the speech therapist went. She had tested a few things: how she makes sounds, how she puts sentences together, and how she thinks social conversations should go. As for sounds, she said that Z had a little trouble with S, L and R, and mixing up F and TH. She also said, "I was kind of surprised -- you nailed it!" I told her I'd studied a little linguistics. As far as forming sentences, she had no trouble at all. The social speech was the funny part. First, she said that she mostly answered appropriately, but that there were some anomalies. For example, what would she do with this group of kids, one of whom looked triumphant and another sad? She’s address the problem with “trickery!” She also mentioned that at one point, Zadie was jumping around the room and saw what was on her clipboard — a rubric with scores ranging down from “strong.” So after that, Z would think hard about her answer (what she would say in a social situation), then ask if she’d scored a “strong.” (The report reads, "It should be noted that Azadeh was able to observe the assessor's scoring sheet... and quickly came to understand the scoring procedures. She then became interested in how she was scoring and seemed to tailor her answers in order to achieve the best score.") The speech therapist also said she asked Zadie how old she thought she was, and Z said “Well, you don’t have any signs of the twenties on you, so I’d say 40.” We all laughed, then vaguely wondered what the signs of the twenties were and how you could get them. Is there a special cream?
Then Ms. R asked the psych to go. But a few seconds in, she interrupted her to refer to another report. The psychologist, who had been really pleasant to me, responded surprisingly sharply: "You want me to go or her? I just started." So I was kind of wondering if there was some tension there. Anyway, she thought we should consider outside counseling (I am considering it, but I'm also considering whether there are enough hours in the day!), and she thought it was sweet that Z had drawn a picture for her. But then she shared the interesting news of Z's cognitive tests. It feels weird to even share this, honestly, but they were out of this world. They basically measured IQ in three different areas, short term memory, learning index, and fluid reasoning. The scores were 131, 144, and 121. The first two are considered to be in the 98th and 99.8th percentile of the population, labeled on the report "upper extreme." The third one looks practically ordinary in comparison -- 92nd percentile, above average. Mrs. N, the psychologist, also stressed several times (and wrote in her report) that because Z got up to play with xylophones, go to the bathroom, etc. as many as ten times during each portion of the test, that her scores "should be considered a minimum estimate." She would have scored higher, Mrs. N thought, if she could have just sat still!
The other part of her report was the bad bit -- attention problems, hyperactivity and so on. But I'll skip that, since it's not news to any of you.
Then we went to Ms. S, who had given a different kind of cognitive test. This one broke reading, writing and math skills into discrete categories and assigned them a "grade level equivalent." The scores ranged from a low of 1.6 (for math) to a high of >16.8. Although Ms. S had said these were grade equivalents, I thought I must be looking at the wrong column. I mean, what's grade 16.8, anyway? Oh, it's college. The end of the senior year of college. And an on-purpose "greater than" sign. For the record, that score was in "reading recall," and Ms. Santos said she had read Z a passage aloud, then asked her to repeat as much of it as she could remember. She repeated it verbatim. Ms. S said she even looked at her card to see if it was somehow in Z's line of vision. It wasn't.
All her other language scores ranged from a low of 5th grade to a high (other than that one crazy outlier) of 13th grade -- freshman year of college (in fact, of the 13 language scores, 7 of them fell in the college range, and two more in 12th grade). Math scores were lower -- a lot closer to average -- but Ms. S gave two explanations for that as well. First, she just hasn't been taught how to do some of the math yet, and second, she was distracted during that part of the test because she had a major potty accident.
The psychologist sort of summed it all up for us by saying that we see a kid like this "once in a blue moon."
So then we started talking about classroom issues and what to do and how to solve them. Mrs. R thought we should try "social missions," where someone gives her a mission, like "ask someone to play," then observes her doing that at recess, then debriefs with her later on how it went. She very brightly asked who would take that on. And you could just see everyone that worked with Z trying to take a step backwards yelling "NOT IT." It was a long conversation about whether it should be in the IEP at all, who might or might not have time to do it, why it was really no big deal and it wouldn't take that much time, etc. and finally why Mrs. R was "disappointed." It wasn't ugly, exactly, but I don't think it was very pretty, either. But I understand -- if someone asked me to spend extra time coming up with additional (however short) assignments for a kid and them observing them during passing period AND making it a data-collection issue for a goal in an official document? I'd balk, too. Recess time is bathroom break time, is put-the-math-away-and-get-the-art-project-out time, is breathe-for-a-second time. And trying to run outside and follow my champion sprinter to try to eavesdrop on her talking to a classmate? Seems like too much time, too much work, and too little consideration of the bathroom break issue. I wasn't upset about it, but Mrs. R was.
We're going to keep doing a lot of stuff we're already doing, which is only working so well. I mean, when she's out of the classroom, apparently that's working great. But we could probably find ways to keep her out of the classroom for all six hours, and that's not really the goal of school, is it?
Mrs. R mentioned skipping grades, but because of the social immaturity, we sort of all shook our heads "no" simultaneously. She seemed perplexed and said, "It's hard to know what to do when she's this gifted. You know, a high school student who needs an extra challenge, we just enroll them at City College, but you can't do that with a seven year old, can you?" We all shook our heads no again. She paused thoughtfully. "Sac State is right down the street?"
I suggested that maybe she get some time in the GATE lab with the teacher in there (who also happens to be Z's beloved pre-school teacher). They tried that on Friday and had good results right away. More outside-the-classroom time, but she really seemed to enjoy it, and of course didn't get into any trouble.
I also suggested a classroom aide. Mrs. R said upfront that it was really hard to get an aide, that they didn't do dedicated aides anymore (this is not true, but they are probably for different kinds of issues than my kid's), that we won't even get a meeting until March, and that there's a packet to fill out. I was like, "well, let's get the packet started, then." So that's something to get started on, but I am a little disappointed in how slow it all is! We couldn't start that until we had the IEP. We had to do all the testing before the IEP. I mean, I started this process in August, and it's almost the end of the first semester. And it'll be practically Spring Break before we get a meeting about an aide? I mean, in the long run, if we can get some positive changes made, it'll be good not just for this year but for many years to come. But this year it's taking a long time.
So some of our plan is "keep doing what we're doing." We will add 30 minutes of speech therapy once a week. She might get to be part of a "social group" of peers that also need some help learning how to interact appropriately. She'll still get those much-needed breaks in the day. And she'll have some time in the GATE lab -- on Friday she learned about the Capitol.
They're also going to call in the "behavior specialist" who can rearrange aides already on her campus if a kid no longer needs one, and then that aide can be assigned to Z's classroom (not to Z specifically, but having another adult in the room could really help Mrs. P out, probably).
You know, I really want her to have a normal childhood and a positive school experience. I opted not to send her to the GATE magnet school, because I didn't want that kind of pressure on her. And she's definitely not mature enough to skip a couple grades (much less to go to Sac State -- good god, I'm just imagining what a classroom with her in it would look like). And her intelligence does not really "balance out" or whatever her difficult behaviors. Several friends suggested schools for brainiacs, or schools with different structures (like Montessori), but I just don't know what to do. I don't want to pretzel everyone's schedules and commutes around in the distant and possibly unfounded hope that she'd do better if she was more challenged. She might, but her gifted-ness is far from her only difference from the norm. The idea of putting her into a Montessori school feels like dropping a death metal band into the local acoustic folk jam night. Probably not a good fit, is what I'm saying.
We had breakfast with a friend today, and Sweetie mentioned Z's diagnosis. He is a psychiatrist, and he was like "whoa whoa whoa! I would not start using the A-word!" And I know he means well (and likes Zadie), but he hasn't seen her at her most difficult. She can be a great kid, and I know it. But she can't choose to be a great kid all the time. She's autistic. She perseverates. She stims. She gets in people's space. She yells. She interrupts, she monologues, she says rude things, even to friends (even to people she loves, like her dad and me). She doesn't sustain eye contact. She fidgets. She has difficulty with transitions. She is germ-phobic and can't pick a bathroom stall, so she has potty accidents. She is a really smart, really hard kid, with some magical moments and some times I want to sell her to gypsies.
Sorry this is so long. Sometimes I just write this stuff so I can go back to it later. Thanks for reading if you stuck with me. There is no ending to be found here.